{"id":27872,"date":"2023-11-26T15:50:30","date_gmt":"2023-11-26T15:50:30","guid":{"rendered":"https:\/\/www.vegaintro-projekti.com\/pilar-stari\/?p=27872"},"modified":"2023-12-07T20:19:34","modified_gmt":"2023-12-07T20:19:34","slug":"objavljena-studija-haemophilia-quality-of-life-of-persons-with-haemophilia-in-croatia","status":"publish","type":"post","link":"https:\/\/www.vegaintro-projekti.com\/pilar-stari\/2023\/11\/objavljena-studija-haemophilia-quality-of-life-of-persons-with-haemophilia-in-croatia\/","title":{"rendered":"Objavljena studija HAEMOPHILIA – Quality of Life of Persons with Haemophilia in Croatia"},"content":{"rendered":"

Kao 46. knjiga Biblioteke STUDIJE Instituta dru\u0161tvenih znanosti Ivo Pilar objavljena je u suizdava\u0161tvu s Dru\u0161tvom hemofili\u010dara Hrvatske i Hrvatske akademija znanosti i umjetnosti, Razredom za medicinske znanosti knjiga Marka Marini\u0107a, Stanka Rihtara i Silve Zupan\u010di\u0107 \u0160alek HAEMOPHILIA – Quality of Life of Persons with Haemophilia in Croatia<\/em><\/strong><\/p>\n

\"i1\"<\/a><\/div>\n

The general insight into the specificities of haemophilia has begun to increase in recent times, and this book aims to make a contribution to this trend. Our goal is to raise the level of knowledge about the specificities of the disease, and the characteristics of the quality of life of persons with haemophilia presented from their own perspective.<\/em> – From the Foreword<\/p>\n

Marko Marini\u0107, Stanko Rihtar, Silva Zupan\u010di\u0107 \u0160alek<\/strong><\/span>
\nHAEMOPHILIA. Quality of Life of Persons with Haemophilia in Croatia<\/strong><\/span>
\nBibliotheca Studies. – Book 46<\/strong><\/span>
\nInstitute of Social Sciences Ivo Pilar – Croatian Haemophilia Society – Croatian Academy of Sciences and Arts<\/strong><\/span>
\nZagreb, 2023. – 212 pp.<\/strong><\/span>
\nISBN 978-953-8404-31-3 (Institute Pilar)<\/strong><\/span>
\nISBN 978-953-347-529-5 (HAZU)<\/strong><\/span><\/p>\n

Contents<\/span><\/p>\n

– Cover<\/a> | Impressum<\/a> | Contents<\/a><\/p>\n

Foreword<\/a>
\n1. BASIC CHARACTERISTICS OF HAEMOPHILIA
\n2. SPECIFICITIES OF HAEMOPHILIA
\n3. TREATMENT OF HAEMOPHILIA
\n4. COMPLICATIONS IN HAEMOPHILIA
\n5. RESEARCH METHOD
\n6. RESULTS
\n7. TABLE OVERVIEW OF RESULTS
\n8. SUMMARY OF MAIN FINDINGS
\n9. SA\u017dETAK GLAVNIH NALAZA .
\nBibliography
\nAbout the Authors<\/p>\n

From the Foreword<\/span><\/p>\n

By incidence, or the proportion of people suffering from a disease in the general population, haemophilia belongs into the group of rare diseases. As a rule, our knowledge about such diseases is limited, causing problems primarily to the patients and their families, their immediate and wider community, and finally doctors and the health system as a whole. Fortunately, the general insight into the specificities of haemophilia has begun to increase in recent times, and this book aims to make a contribution to this trend. Our goal is to raise the level of knowledge about the specificities of the disease, and the characteristics of the quality of life of persons with haemophilia presented from their own perspective.<\/p>\n

The book is thematically divided into two parts. In the first, introductory part, medical aspects of haemophilia are described: the history, epidemiology, pathophysiology, typology, clinical picture, diagnostics and therapeutic options.<\/p>\n

The second part provides a detailed portrait of the lives of adults with haemophilia in Croatia. The data on which it is based were collected as part of the project HEMOQoL \u2013 Quality of Life of Adults with Haemophilia in Croatia \u2013 Medical and Psycho-social Aspects<\/em>, which was carried out by means of a survey among members of the Croatian Haemophilia Society. As can be anticipated from the Project title, the study included objective and subjective indicators of the quality of life, i.e. the sociodemographic, health-related and (socio)psychological status of patients.<\/p>\n","protected":false},"excerpt":{"rendered":"

Kao 46. knjiga Biblioteke STUDIJE Instituta dru\u0161tvenih znanosti Ivo Pilar objavljena je u suizdava\u0161tvu s Dru\u0161tvom hemofili\u010dara Hrvatske i Hrvatske akademija znanosti i umjetnosti, Razredom za medicinske znanosti knjiga Marka Marini\u0107a, Stanka Rihtara i Silve Zupan\u010di\u0107 \u0160alek HAEMOPHILIA – Quality of Life of Persons with Haemophilia in Croatia The general insight into the specificities of… Pro\u010ditaj vi\u0161e o Objavljena studija HAEMOPHILIA – Quality of Life of Persons with Haemophilia in Croatia<\/span><\/a><\/p>\n","protected":false},"author":7,"featured_media":27869,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"ngg_post_thumbnail":0,"footnotes":""},"categories":[21],"tags":[],"yoast_head":"\nObjavljena studija HAEMOPHILIA - Quality of Life of Persons with Haemophilia in Croatia - Institut društvenih znanosti Ivo Pilar<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Objavljena studija HAEMOPHILIA - 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